Evangeline was born April 23, 2009. For the first five days we were filled with excitement, joy, exhaustion, worry and concern. Jeremy was sure that something was not right. I was reassured that everything was normal.
On day 6 we received a phone call asking us to come to the clinic for a sweat test because our daughter might have Cystic Fibrosis. She might have cystic what? We had never heard of CF and Jeremy, being a tech guy, went right to the computer and assumed the worst. I, on the other hand, was in denial and shock. It will be fine. It will be fine. It will be fine.
“Your daughter has Cystic Fibrosis.” It was not fine. I will never forget that day. That room. Those words. Those tears.
[Now]…. We have adjusted. Hospital and doctor visits are a regular thing. Medications are taken on a daily basis. Therapy sessions hooked up to a machine that vibrates her chest to loosen up the mucus in her body is necessary. This will not change. This is her life. Cystic Fibrosis will not define her. The love she has for others, her creativity, strength, and determined will is our Evie. CF is just a footnote and this is only the beginning of her book.
- Elizabeth Mullens, Evie’s Mom
***Help us find a cure for Cystic Fibrosis and in the process help to improve and prolong the lives of those living with CF like our Evangeline. Please make a donation to the Cystic Fibrosis Foundation and walk with us as “Evie’s Ninjas” for the Great Strides Walk! We participate every year in Grand Rapids, but there are walks across the country that you can join. We greatly appreciate your love, prayers, and support!